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Living with ulcerative colitis necessitated the surgical removal of the entire large intestine, resulting in the use of an ostomy bag for waste management.2:10 Managing the stoma requires consistent maintenance, including replacing the adhesive appliance every one to two days, especially when swimming or active.2:36 Coloplast opaque bags with pre-cut holes and Velcro closures provide a reliable system, while curved bags and wax rings help prevent leaks and skin irritation.4:31 Barrier films and aerosol adhesive removers further assist in maintaining skin health.5:19 The process of changing the appliance is manageable in various environments, including on a boat, in public restrooms, or while backpacking.3:13 A three-stage surgical process involves the initial removal of the colon, the creation of a J-pouch from the small intestine, and a final reconnection surgery.8:23 Potential post-operative complications include bowel obstructions and pouchitis.9:46 Diligent self-advocacy and questioning medical providers remain essential throughout the treatment and recovery process.10:18

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Hundreds of miles of rough sailing only to be turned away from our dream destinationoct 2026Making big miles offshore sailing through Indonesiasept 2026Orca sighting! we repair one daggerboard only to break another onesept 2026Sailing to Maratua, a rarely visited Indonesian island sept 2026

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